Neuropathy Part Three, 6/9/16

Ok so in part two we got a diagnosis and we were told it was kind of a “let’s wait and see” thing.  When you are diagnosed with MGUS you are normally a male and normally in your 70’s or 80’s… but again we’re told there is no treatment until the disease progresses.  And it may not.  The chance is 1-2% a year that it will head south.

So the 6 month followup labs were done in May 2015.  There’s about a  week between the time the samples are taken/collected and you just wait; then you have that meeting to discuss the results.

The results were as follows:

  • NO abnormal bands were detected on immunofixation
  • NO Monoclonal proteins were detected
  • NO abnormal peaks were detected on protein electrophoresis
  • NO M-Spike detected

We felt these were good results and awaited the docs opinion.  He said “Whatever you’re doing, keep doing it!” and that’s the kind of thing you like to hear from a doctor especially on a serious subject like this.  He slated a follow-up for one year and that batch of samples was collected last week- tomorrow we go hear what this year’s news is.

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By the way, I realize that I was slacking for a while and there was not much to post.  Every one of you have obligations and lots of ways to spend your time so I appreciate it that many of you are still coming back.  I was getting emails here and there asking when there will be an update.  I have posted several recently; every couple days.  I just popped the subscription “widget” onto the blog yesterday so that you may choose to to be notified by email when a new post has been put up.  The subscription box is along the right side at the top and will just have a box to enter your email address and click SUBSCRIBE. You’ll get an email that will ask you to confirm your subscription; it looks like this;

blog-confirm

Once you click the Confirm Follow button you’re all signed up.  I really should have thought to do this from the get-go but being new to blogging it just didn’t occur.  As i post this only two subscribers are on the list so far but that’s ok.

Blessings to you and thanks for going along on My Journey.

Sam

 

 

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