My Journey

Ok, last week when I posted I left out a detail.  I had broken a tooth Tuesday morning; I wasn’t even eating when it happened, I just noted that something felt weird and stuck my tongue up there.  No great big deal except for my friend Sandi had been on antibiotics for a long period… Continue reading July 11, 2016

Ok I apologize for not being able to keep adding updates regularly as I had hoped.  I do manage to keep pretty busy and the best positive side effect is that I hit the pillow and go right to sleep without much waking throughout the night.  I keep a list of things I need to… Continue reading July 6, 2016

So today was another beautiful day.  We started with a 2.5 mile walk with the dog then off to our appointment.  Results for this year’s tests were very similar to last year’s results as follows: NO abnormal bands were detected on immunofixation NO Monoclonal proteins were detected NO abnormal peaks were detected on protein electrophoresis… Continue reading Oncologist Visit, June 10, 16

Ok so in part two we got a diagnosis and we were told it was kind of a “let’s wait and see” thing.  When you are diagnosed with MGUS you are normally a male and normally in your 70’s or 80’s… but again we’re told there is no treatment until the disease progresses.  And it… Continue reading Neuropathy Part Three, 6/9/16

Ok so in Part One we talked about the onset of neuropathy and what was already ruled out for a cause. In September of 2014, besides the blood tests, full body x-rays had also been ordered.  They were looking for lytic lesions which I am to believe would show up black on a bone.  Thank… Continue reading Neuropathy Part Two, 6/8/16

OK for a while now I have discussed what happened more recently with the blood infection and the related damage to my heart.  I have mentioned neuropathy a few times, most recently on April 26 i think. I just had more bloodwork yesterday and did a 24 hr collection of a certain bodily fluid for… Continue reading Neuropathy Part One, 6/3/16